Data Controller

NHS West Yorkshire Integrated Care Board

Purpose

The Digital Dynamic Support register holds information about individuals with learning disabilities and/or autism, who may have a mental health condition or behaviour that challenges, in community and inpatient settings. The register gives the ICB broad oversight of the care of individuals with learning disability and/or autism and has the primary intention of preventing hospital admissions and placement breakdowns as well as facilitating discharge from inpatient settings. The register also helps inform local population need for commissioning.

Lawful basis

GDPR Article 6(1)(e) – processing is necessary for the performance of a task carried out in the exercise of official authority vested in the controller.

GDPR Article 9(2)(h) processing is necessary for the purposes of the provision of health or social care or treatment or the management of health or social care systems and services.

In addition, the NHS England National Care and Treatment Review policy mandates that the ICB develop and maintain an ‘At Risk Register’.

Type of information used

Personal data: the following items of data may be processed:

  • Name
  • Date of birth
  • Place of residency
  • NHS number
  • Key professional involvement, their names and contact details

Special category data: health data including diagnosis and Care Plans. The following may also be recorded:

  • Current issues that relate to risk of admission.
  • What has been tried that could mitigate risk (including positive strategies to improve a person’s quality of life, increasing life opportunities and self-esteem).
  • What could be useful to further reduce risk to individuals.
  • Action plan moving forwards including recommendations for current and potential future service involvement.

Some limited identifiable information relating to the individual’s carer may also be recorded for the purposes of supporting, assessing and mitigating risk relating to placement breakdown and admission.  

Who we will share the information with (recipients)

We may be required to share this information with:

  • NHS Learning Disability and Autism Services
  • NHS Mental Health Services
  • Local Authority Social Care Services
  • Local Authority Education
  • Barnardos

Do we use any processors

North of England Commissioning Support Unit who supply the Digital Dynamic Support Register system and host the information securely on their servers.

The Health Informatics Service (THIS), and West Yorkshire ICB Leeds IT and Leeds City Council IT Integrated Digital Service (IDS) our IT suppliers who store all our information securely on their servers.

Microsoft Azure, supported by IT staff, host our data.

How we collect (the source) and use the information

A referral form is completed and  sent from health and social care providers or from the individual themselves if they self-refer, to the dynamic support teams in Provider Trusts.   The information will be used to identify individuals who with robust, timely, proactive monitoring intervention and support can be prevented from unnecessary or inappropriate admission to mental health or specialist hospitals.

How long we will keep the information

6 months after the individual has been removed from the Digital Dynamic Support Register.

Your rights

Under the UK General Data Protection Regulation all individuals have certain rights in relation to the information which the ICB holds about them. Not all rights apply equally to all our processing activities as certain rights are not available depending on the lawful basis for the processing.

If you require further detail each link below will take you to the Information Commissioner’s Office website where further detail is provided in the section ‘When does the right apply’.

These rights are:

Under the NHS Constitution you have the right to privacy and to expect the NHS to keep your information confidential and secure.

If you have an enquiry in relation to your data protection rights please contact wyicb.foi@nhs.net